INFORMATION STANDARDS ASSURANCE PROCESS INFORMATION STANDARD DEVELOPMENT PROPOSAL FOR NEW OR CHANGED INFORMATION STANDARD

Transcription

1 INFORMATION STANDARDS ASSURANCE PROCESS INFORMATION STANDARD DEVELOPMENT PROPOSAL FOR NEW OR CHANGED INFORMATION STANDARD Sexual Assault Referral Centres Health Data Collection 11 July 2012

2 INFORMATION STANDARD DEVELOPMENT PROPOSAL FOR NEW OR CHANGED INFORMATION STANDARD Assistance in completing this document can be found in the GUIDANCE ON COMPLETING THE INFORMATION STANDARD DEVELOPMENT PROPOSAL SUBMISSION TEMPLATE REVISION HISTORY Date of this revision: Version no. Revision date Summary of Changes Changes marked SUBMITTED BY: Document completed by: Julia Letton Role & organisation: Policy Manager, Mental Health and Vulnerable Groups, Welsh Government Phone: FEEDBACK TO BE PROVIDED TO: WISB s decision will normally be communicated within 3 working days after the meeting. Informal feedback may be available, on request, within 2 weeks. A formal Outcome will be ratified at the next WISB meeting and sent to Sponsors and Developers. If the feedback is to be directed to another nominee from that given above, please provide the name and contact details below. Name: N/a N/a SUBMISSION PURPOSE Proposal submitted for: Formal Approval If this Proposal submission is not for formal approval then please state the specific aspects on which you would like more detailed comments. Specific Areas for WISB to comment on when not submitting for formal approval at the Proposal Page: 2 of 7

3 stage SECTION 1: BASIC INFORMATION STANDARD DESCRIPTORS 1. Information Standards Reference Number ISRN 2012 / Name of Information Standard Sexual Assault Referral Centres Health Data Collection 3. Type of change A new standard 4. Sponsor Julia Letton Policy Manager, Welsh Government. Julia.letton@wales.gsi.gov.uk Tel Developer The proposed developer is NHS Wales Informatics Service 6. Implementation Date asap Page: 3 of 7

4 SECTION 2: BUSINESS JUSTIFICATION 7. Purpose A Sexual Assault Referral Centre (SARC) is a one stop location where victims of sexual assault can receive medical care and counselling whilst at the same time having the opportunity to assist the police investigation into alleged offences, including the facilities for a high standard of forensic examination. There are six SARCS in Wales, Cardiff, Risca, Swansea, Carmarthen, Merthyr (grouped together under New Pathways) and Colwyn Bay. SARCS receive funding from a variety of sources, including the Welsh Government and in the past have provided a standard set of data to the Home Office as part of condition of their funding. This is no longer a requirement. This is a priority of the Welsh Government s Sexual Assault Referral Centres National Planning Group and includes a commitment in the SARCS Specifications for Children and Adults. It is also a component of the Right to be Safe and Domestic Abuse and Violence Against Women strategies as highlighted in Programme for Government (pg 26, chapter 7). There is major scope for standardising and aggregating statistics collected locally by the six Welsh SARCS and a unique opportunity to collect consistent, comparable data. Currently, obtaining like-for-like data from each SARC is problematic as the level of data collected by the six SARCS varies considerably. It is therefore difficult to accurately measure demand, needs and capacity in Wales. Currently, there is a standard range of data collected by every SARC which conforms to the Home Office s standards for Minimum Data Set, however, this is mostly focussed on crime and not health. The uniform data collection will inform the future development of SARCS in light of possible cuts in Home Office funding by providing evidence, efficiency, effectiveness and support accountability and leadership for SARCs. In addition, it will inform the plans to put the data governance, collection, processing and publication on a firm basis by using NHS Wales Informatics Service (NWIS). The data collection will: inform policy development within the Welsh Government. Provide a clear picture of potential systematic patterns of sexual offences for police intelligence; Benefit SARCS providers themselves to improve management information, performance information and information around accountability and governance. The data collection will be provided by the six sexual assault referral centres for use by the Welsh Government and onward transmission to the Police Authorities if applicable. The level of detail to be collected should not pose a problem for SARCS to provide. All data set lines are already being collected by SARCS. This would merely create a standardised format across all SARCS for the Welsh Governments purpose. The data will be used by the Welsh Government to inform health policy development in Wales and to ensure funding is appropriately distributed based on information and data collected. It will also be used by SARCs providers to provide performance, management, accountability and governance information to the Welsh Government by way of quarterly and annual reports. The data will be also used by the Welsh Government to publicly report in this area. It will also be used to highlight any anomalies and omission of services in some areas of Wales. The data will be sourced from the SARCS quarterly and transmitted to NWIS for analysing. The data will then be processed into quarterly statistical bulletins and tables for annual reporting. Strengths To ultimately improve help for victims by measuring demand, need and capacity in Wales for SARCS ensuring funding is targeted and distributed appropriately. Page: 4 of 7

5 To provide SARCS management, performance, accountability and governance information. To provide data for evidence-based policy. To identify gaps in provision for victims. Weaknesses Unclear clarification of data set headings. Ensuring data collection achieves objectives. 8. Scope A subset of users will have access to the statistical bulletin provided quarterly that includes professionals and clinicians who are standard members of the SARCS National Planning Group. Welsh Government officials to inform health policy development and to ensure funding is provided appropriately and targeting the right areas. 9. Funding NWIS has been initially approached to ascertain the cost to develop and support the data collection and an estimate of cost amounts to 200k - 115k recurring support annually and 80k one off cost for development. These costs are associated with the Welsh National Substance Misuse Database. The costings are dependent on the number and frequency of the data submissions to be processed and it is understood that NWIS are currently processing approx 60 data submissions per month for Substance Misuse, plus monthly, 1/4ly and annual reporting requirements which have associated costs. Early indications are that the SARCS database will not be so detailed and expect to pay the development one off cost and recurring support for processing the data, producing quarterly statistical bulletins and annual reports. Currently, there is no funding available within existing mental health budget lines to support this. 10. Support This is a priority of the Welsh Government s Sexual Assault Referral Centres National Planning Group and includes a commitment in the SARCS Specifications for Children and Adults. It is also a component of the Right to be Safe and Domestic Abuse and Violence Against Women strategies as highlighted in Programme for Government (pg 26, chapter 7). The suggested minimum data set has been formally discussed and agreed at the SARCS Planning Group meeting on the 1 May. Representatives of the Group consist of Welsh Government officials, SARCS Chief Executives, Police Authorities and NHS clinicians. SECTION 3: HEALTH INFORMATION AND IT STRATEGIC, NATIONAL AND INTERNATIONAL FIT 11. Strategic National Fit 12. Known standards in use nationally and internationally SARCS in England are currently using advanced database products such as Paloma and Insight. Page: 5 of 7

6 SECTION 4: THE PROPOSAL 13. Proposed Solution The data set will contain the following lines: Gender Sexuality Age LA area (home of location of victim) Post code of incident Ethnic origin (language) Vulnerability factor: Looked after Children Vulnerability factor: Immigration status ISVA/CYPSVA (5 of total referrals seen) Emotional support provided to client 1-3 sessions, 4-6 session Number of counselling sessions 1-6, 6-10, 10+ Referral to other services (a) mental health (b) physical health (c) child/adult protection (d) police Repeat attendee (within 1 year) Time of attendance (24 hr clock) Waiting time Examination (medical/fme) Optional: prostitution/trafficking/ substance misuse/alcohol assisted/domestic violence Assessed for post exposure prophylaxix (y/n) (if y HIV/PEP/emergency contraception/hep B administered in SARC) 14. Testing / Pilot To be discussed further. 15. Information Governance None. The data to be collected will not be victim identifiable. Legal advice has been sought to identify potential ramifications for holding information on perpetrators. It was decided that holding this information did not benefit health policy direction. 16. Commercial Considerations none 17. Fitness for Purpose The SARCS National Planning Group will review that data collection annually to ensure it is fit for purpose.. SECTION 5: IMPACT ASSESSMENT 18. Impact Assessment To be explored further once data set lines have been agreed. Page: 6 of 7

7 DEVELOPMENT PLAN 19. Development plan Page: 7 of 7