PHA Canada Eastern Regional Symposium

Transcription

1 Toronto October 13 14, 2017 PHA Canada Eastern Regional Symposium

2 Welcome to Symposium! Welcome PHriends! On behalf of PHA Canada s Board and staff, thank you for joining us for our first ever Eastern Regional Symposium! We are very excited to bring you a full day of learning sessions and discussion groups designed to give you the knowledge, skills, and confidence for successfully managing life with pulmonary hypertension. Whether you are new to the Canadian PHamily or have been to many PH conferences, we hope today serves as a reminder that you are never alone in your PH journey. A strong and united PH community stands with you every step of the way. As PHA Canada gets ready to celebrate our 10 th Anniversary next year, we are as committed as ever to bringing the PH community together to improve the lives of all those affected by PH. We hope you make valuable connections today that leave you feeling informed, supported, and empowered to keep PHighting. Thank you for being with us and have a PHabulous day! Symposium Participants Get to know the PHighters at Symposium thanks to colour-coded nametags: Patient Caregiver or Family Member Medical Professional PH Supporter By 2050 the world s population over 60 will have doubled to two billion, making age-related illness an even greater challenge for society. That s why we re seeking to help people stay healthier and more active in later life, be it through more targeted treatments for cancer and cardiovascular conditions, solutions for eye diseases, or ways to keep those with arthritis moving. Because life shouldn t stop at 60 not by any means. To find out how our innovations are helping to change lives for the better, visit

3 Thank You to Our Volunteers PHA Canada gratefully acknowledges the support and contributions of the many people who have made this event possible. We wish to take this opportunity to thank our volunteer Steering Committee members Andrea Gardner, RN; Jessica Pinto, RN; Janette Reyes, NP; and Beth Slaunwhite as well as all our event volunteers: Rebecca Andre Heather Barbour Nicky Barton Wendy Bedard Jim Burell Roxanna Ching Darren Dempsey Nicole Dempsey Amanda English Tina Giroux-Proulx Derek Henderson Kathy Ilano Sulekha Jama Amanda Jeffs-Ryeland Simone Kenshiro Teri Kingston Jenn Lalonde Kathy Mills Judith Moatti Brooke Paulin Joan Paulin Kerry Pierce Jeannie Tom Kendall Tracy Maxxine Rattner Marion Roth Whitney Roth Anna Slama Grace Wickenheiser Sadie Windego Thank you also to our speakers for sharing their time and expertise. Check out the enclosed list of speakers for more information about these PHantastic PHighters. Finally, a very special thank you to our event sponsors: Actelion, Bayer, McKesson Canada, Pfizer Canada, and United Therapeutics. Thank you! Kids Zone 8:30 a.m. 4:15 p.m. (closed for lunch) Ontario Thank you to Project Sunshine Canada for providing child-minding services! Project Sunshine Canada is an international non-profit organization that provides free educational, social, and creative programs to children facing medical challenges and their families. Their trained volunteers spread sunshine, restoring a crucial sense of normalcy to the pediatric healthcare environment. Project Sunshine Canada s programs include arts and crafts, reading, caregiver wellness, and special events, which provide children and their families with a much needed break from the daily trials associated with their medical issues. Quiet Space 10:15 a.m. 1:30 p.m. North York South Quiet room to relax, reflect, and pay tribute to lost PHighters. Canadian PH Professionals Network 8:00 a.m. 4:00 p.m. Canadiana PHA Canada is happy to welcome the Canadian PH Professionals Network at the Eastern Regional Symposium.

4 Symposium Program Friday, October 13 th Welcome Reception 5:00 p.m. 7:00 p.m. Foyer Refreshments, registration & networking Saturday, October 14 th Breakfast & Registration 8:00 a.m. 9:00 a.m. Foyer Welcome 9:00 a.m. 9:15 a.m. Opening Plenary 9:15 a.m. 10:00 a.m. Memorial 10:00 a.m. 10:15 a.m. Break 10:15 a.m. 10:45 a.m. Break Out Sessions 10:45 a.m. 11:30 a.m. Multiple rooms Hot buffet, registration & networking Introductory remarks by Jamie Myrah, PHA Canada Executive Director The History of PH in Canada Speakers: Dr. Sanjay Mehta & Dr. Ali Kapasi Special acknowledgement of the PHighters who have passed away in 2017 Led by Dr. Sanjay Mehta, PHA Canada Board Chair Refreshments & networking Myth Busters: Q&A Panel with PH Medical Specialists Speakers: Roxanna Ching, Pharmacist; Dr. George Chandy; Andrea Gardner, RN; Dr. Nathan Hambly & Lyda Lesenko, RN Managing IV & Subcutaneous Meds Ballroom North Speakers: Nicole Dempsey; Claudia Iatauro, RN; Raylene Matlock, RN & Marion Roth Pediatrics Panel North York North Speakers: Darcy Farrell, RN; Kerry Pierce & Janette Reyes, NP

5 Break Out Sessions 11:30 a.m. 12:15 p.m. Multiple rooms Tips & Tricks: Q&A Panel with Patients & Caregivers Speakers: Sue & James Bailey, Wendy Bedard & Kendall Tracy, Madison Blenkinsop, May Hughes & Judith Moatti Mental Wellness: Strategies for Coping with Chronic Illness Ballroom North Speaker: Dr. Joe Pellizarri CTEPH Panel North York North Speakers: Anastasia Bykova, NP & Patrick Hemmelheber Buffet Lunch 12:15 p.m. 1:30 p.m. Our Journeys Speakers: Dr. Lisa Mielniczuk & Charlene Smith TBA Peer-Led Discussion Groups 1:30 p.m. 2:15 p.m. Multiple rooms Break 2:15 p.m. 2:45 p.m. Newly Diagnosed (<2 yrs) Leader: Beth Slaunwhite Living with PAH (2+ yrs) Leader: Nicole Dempsey Living with CTEPH (2+ yrs) Leader: Anna Slama Transplant (pre/post) Leader: Tina Giroux-Proulx Young Adults Ballroom North Leader: Brooke Paulin Refreshments & networking Caregivers Ballroom North Leader: Teri Kingston Parents North York North Leader: Kerry Pierce Discussion en français Foyer Leader: Judith Moatti Take Action PAH North York South Leader: Joan Paulin Closing Plenary 2:45 p.m. 4:00 p.m. The Future of PH Therapies Speakers: Dr. John Granton, Dr. Steeve Provencher & Dr. Duncan J. Stewart Moderator: Dr. Sanjay Mehta

6 Symposium Floor Plan Westin Prince Hotel Conference Centre Lower Lobby Level NORTH PRINCE BALL FOYER SOUTH DUNCAN R CROWN NORTH C Canadian PH Professionals Network NORTH PRINCESS SOUTH Q SOUTH NORTH YORK K Q R Kids Zone Quiet Space Registration C CANADIANA K DON MILLS ONTARIO Sessions & Discussions

7 ACTELION IS PLEASED TO SUPPORT THE 2017 PHA CANADA EASTERN REGIONAL SYMPOSIUM. Welcome to all PHighters! Congratulations to PHA Canada for organizing this unique opportunity for all to learn and connect with the Canadian PH Community.

8 Thank You to Our Sponsors: Gold Level Sponsors: Bronze Level Sponsor: In-Kind Sponsor: A better life for all Canadians affected by pulmonary hypertension.